Creat el 14/06/2024
Mi Sobrino Manuel
Manuel is a 5-year-old boy with a RAC1 gene mutation and Dandy-Walker syndrome—rare, incurable conditions that bring with them a host of issues, including congenital heart disease, poor motor coordination and balance, hyperactivity, epilepsy, and feeding, speech, and behavioral disorders. That is why we founded the "Mi Sobrino Manuel" Association: to raise funds for research and therapies, helping Manuel achieve a better quality of life. Will you help us? Saber-ne més
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