Judith Amatxu de un Extravaliente

Vizcaya,  Espanya


Teaming Manager de 1 Grups

Cada mes aporta 1 € a 1 Grups

Des del 23-01-2026 ha aportat 1 €

Grups que lidera

1

1 € Recaptats

7 Teamers

Teaming Manager des de:  23/01/2026

ASOCIACION MYT1L EXTRAVALIENTES

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)