Judith Amatxu de un Extravaliente

Vizcaya,  Spain


Teaming Manager in 1 Groups

Contributes every month: €1 to 1 Groups

Since 23-01-2026 has contributed €1

Groups led

1

€1 Raised

7 Teamers

Teaming Manager since:   23/01/2026

ASOCIACION MYT1L EXTRAVALIENTES

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)