Judith Amatxu de un Extravaliente

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)

At Teaming, more than 430,000 people Change Lives with €1 a month. For more than 13 years we have been helping all kinds of social causes to get constant financial help completely free of charge. Together we have raised more than 70 million euros and, as long as social causes need us, we will continue to support them. With this Teaming Foundation Group we make it possible. Will you join us?

Asociación sin ánimo de lucro que trabaja en el ámbito hospitalario desde 2008. Contamos con un equipo voluntario y profesional formado en técnicas específicas de payaso de hospital partiendo de una formación continua que abarca técnicas artísticas y sanitarias. Nuestra misión es dar respuesta a las necesidades de las personas menores hospitalizadas así como a sus familias y al personal médico que les atiende, contribuyendo a la mejora de su calidad de vida.

Children born with severe heart disease require surgical interventions at birth and / or in the first months of life. These interventions are repeated often, throughout their lives with long hospital admissions and periodic medical check-ups. Families in this situation need psychological support within the Hospital to be able to cope with the situation. With € 1 a month you can help to maintain our psychological service within the Hospital.