Judith Amatxu de un Extravaliente

Vizcaya,  Spagna


Teaming Manager di 1 Gruppi

Dona ogni mese: 1 € a 1 Gruppi

Da 23-01-2026 ha contribuito 1 €

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7 Teamer

Teaming Manager dal:   23/01/2026

ASOCIACION MYT1L EXTRAVALIENTES

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)