Judith Amatxu de un Extravaliente

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)

A Teaming, més de 430.000 persones Canviem Vides amb 1€ al mes. Fa més de 13 anys que donem suport a tota mena de causes socials per aconseguir ajuda econòmica totalment gratuïta i constant. Junts hem sumat més de 70 millions d'euros i, mentre les causes socials ens necessitin, seguirem al seu costat. Amb aquest Grup de la Fundació Teaming ho fem possible. T'uneixes?

Asociación sin ánimo de lucro que trabaja en el ámbito hospitalario desde 2008. Contamos con un equipo voluntario y profesional formado en técnicas específicas de payaso de hospital partiendo de una formación continua que abarca técnicas artísticas y sanitarias. Nuestra misión es dar respuesta a las necesidades de las personas menores hospitalizadas así como a sus familias y al personal médico que les atiende, contribuyendo a la mejora de su calidad de vida.

Children born with severe heart disease require surgical interventions at birth and / or in the first months of life. These interventions are repeated often, throughout their lives with long hospital admissions and periodic medical check-ups. Families in this situation need psychological support within the Hospital to be able to cope with the situation. With € 1 a month you can help to maintain our psychological service within the Hospital.