Judith Amatxu de un Extravaliente
Vizcaya, Espanha
Teaming Manager de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 23-01-2026 contribuiu 1 €
Grupos de que é líder
1 € Arrecadados
7 Teamers
Teaming Manager desde: 23/01/2026
We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)