Judith Amatxu de un Extravaliente

We are a newly formed association, made up of three families whose children have an ultra-rare disease linked to the MYT1L gene. We came together to raise awareness of this little-known genetic condition in Spain, where there is currently no interest in its study. Our goal is also to connect with more families and create a support network (currently 5 families are connected) and to support the research being conducted in France, Germany, and the USA. Thank you in advance :)

Na Teaming, mais de 430 000 pessoas transformam vidas com 1 € por mês. Há mais de 13 anos apoiamos todo o tipo de causas sociais, oferecendo ajuda financeira de forma totalmente gratuita e contínua. Juntos já angariámos mais de 70 milhões de euros e, enquanto as causas sociais precisarem de nós, continuaremos ao seu lado. Com este Grupo da Fundação Teaming, tudo isto é possível. Quer juntar-se a nós?

Asociación sin ánimo de lucro que trabaja en el ámbito hospitalario desde 2008. Contamos con un equipo voluntario y profesional formado en técnicas específicas de payaso de hospital partiendo de una formación continua que abarca técnicas artísticas y sanitarias. Nuestra misión es dar respuesta a las necesidades de las personas menores hospitalizadas así como a sus familias y al personal médico que les atiende, contribuyendo a la mejora de su calidad de vida.

Children born with severe heart disease require surgical interventions at birth and / or in the first months of life. These interventions are repeated often, throughout their lives with long hospital admissions and periodic medical check-ups. Families in this situation need psychological support within the Hospital to be able to cope with the situation. With € 1 a month you can help to maintain our psychological service within the Hospital.