TAMARA FERNÁNDEZ JUAN

When Martina was 2 months old, she broke her two legs while into her mothers arms. Since then, she has suffered multiple fractures that prevent her from walking normally. Our daughter suffers from Osteogenesis Imperfecta, better known as brittle bone disease. 100% of the collected funds go to entities and projects committed to improving the quality of life of patients.

IINFORMATION ELA SPAIN Created in 2001, the Spanish Association against LEUKODYSTROPHY (ELA for its acronym in English of European Leukodystrophy Association) brings together families affected by the disease. The association initiates various actions in order to collect funds to finance RESEARCH, inform medical professionals and HELP FAMILIES. You can consult all the activities and achievements of ELA Spain through our WEB page: www.elaespana.com

La Displasia Fibrosa (DF) es una enfermedad que provoca dolor, deformidad de los huesos y fracturas. La DF puede existir de manera aislada o asociada a trastornos de la piel y endocrinos, dando lugar al Síndrome de McCune-Albright (MAS). Son enfermedades raras que a día de hoy no tienen cura. Nuestro reto es lograr que la DF/MAS sea una enfermedad 100% curable. Ayúdanos a recaudar fondos para financiar su investigación. ¡¡Necesitamos tu ayuda!!

One euro a month, 12 a year, can be definitive for us. From Aefat, an association that brings together the families of about 40 children and young people affected by ataxia telangiectasia in Spain, we fight to find a cure or treatment for this devastating disease. A countdown. A rare, neurodegenerative, multisystem disease that causes severe progressive physical disability and an increased likelihood of cancer. We finance several research projects. Can you help us?

Queridas personitas este teaming ha sido creado para cubrir algunos de los gatos mensuales de las campañas y para trabajar en mejorar la web. Un euro al mes que será descontado de tu cuenta si quieres colaborar con las actividades de difusión que realizo. Gracias.