Lysosomal Acid Lipase Deficiency (LAL-D) is a rare, serious, and incurable disease. At LAL-D PO, we fight every day to change this. Our goals: - Early diagnosis - Access to proper care - Scientific research to reach our biggest dream: a cure With just €1/month, you can help us move forward. Join our Teaming group and be part of the change. Together we can make it!
Lysosomal Acid Lipase Deficiency (LAL-D) is a rare, serious, and incurable genetic disease. Its most aggressive form, known as Wolman disease, can lead to death within the first months of life. At AELALD, we fight every day to change this reality. With your help of just €1 a month: - We raise awareness about this little-known disease. - We promote early diagnosis, which is key to saving lives. - We support families with information and guidance. - We organize family gatherings to build a strong, united community. - We drive research in the hope of a better future. Join our Teaming. With just €1, you are giving hope. 💙
Publicado em
20/10/2016
Página web:
https://linktr.ee/asociacionlald
AELALD is growing and transforming. From now on, we are LAL-D Patient Organization (LAL-D PO)
We are taking this step because more and more families from around the world are reaching out to us—and we want to be there for them.
Our mission remains the same: to support, give a voice, and fight for early diagnosis, research, and better quality of life for everyone affected by LAL-D.
Stay tuned! Our new website will be available soon in English and Spanish.
#TogetherWeAreStronger #LALD #LALDPO #LAL_D #LALDeficiency #LysosomalAcidLipaseDeficiency #LysosomalAcidLipase #WolmanDisease #CESD #LivingWithLALD #LALDPower #LIPA #EverySecondCounts
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Data de publicação
07/10/2016
Criado por
Asociación Española Déficit de Lipasa Ácida Lisosomal (AELALD)
Tipo de Grupo
ONG
Âmbito
Cuidados e tratamentos de saúde
Famílias
Investigação científica
País
Espanha
Região
Barcelona