Una cura para Mauri

Una cura para Mauri

95  Teamers

My 3-year-old son Mauri suffers from Alexander disease, an ultra-rare, neurodegenerative and fatal condition with no cure or treatment. We have currently managed to open a research pathway at Hospital del Mar in Barcelona that could save his life by stopping the progression of the disease, but we need help to raise the cost of the treatment, which is between €500,000 and €1 million. Will you help us?

Project we support

Tratamiento personalizado con terapia Aso

Mauro y el 30% de los enfermos de Axd

Todos los fondos recaudados se destinarán a financiar el desarrollo de la terapia ASO para Mauri, cuyo desarrollo necesita entre 1 año y medio y 2 años y su coste está entre 500.000 y 1 millón de euros


Posted on
16/01/2026

Raised

Total raised:
€1
See collection history

Information

Publication date
25/12/2025

Created by
Asociación Española de Enfermos de Alexander

Type of Group
Non-profit

Field
Patient care

Country
Spain

Region
Pontevedra

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