My 3-year-old son Mauri suffers from Alexander disease, an ultra-rare, neurodegenerative and fatal condition with no cure or treatment. We have currently managed to open a research pathway at Hospital del Mar in Barcelona that could save his life by stopping the progression of the disease, but we need help to raise the cost of the treatment, which is between €500,000 and €1 million. Will you help us?
Todos los fondos recaudados se destinarán a financiar el desarrollo de la terapia ASO para Mauri, cuyo desarrollo necesita entre 1 año y medio y 2 años y su coste está entre 500.000 y 1 millón de euros
Veröffentlicht am
16/01/2026
Datum der Veröffentlichung
25/12/2025
Created by
Asociación Española de Enfermos de Alexander
Art der Gruppe
Nichtregierungsorganisation
Feld
Hilfe für Kranke
Land
Spanien
Region
Pontevedra
Kopiere die URL und füge sie ein
https://www.teaming.net/unacuraparamauri
