My 3-year-old son Mauri suffers from Alexander disease, an ultra-rare, neurodegenerative and fatal condition with no cure or treatment. We have currently managed to open a research pathway at Hospital del Mar in Barcelona that could save his life by stopping the progression of the disease, but we need help to raise the cost of the treatment, which is between €500,000 and €1 million. Will you help us?
Todos los fondos recaudados se destinarán a financiar el desarrollo de la terapia ASO para Mauri, cuyo desarrollo necesita entre 1 año y medio y 2 años y su coste está entre 500.000 y 1 millón de euros
Publicat el
16/01/2026
Data de publicació
25/12/2025
Creat per
Asociación Española de Enfermos de Alexander
Tipus de Grup
ONG
Àmbit
Ajuda a malalts
País
Espanya
Província
Pontevedra