We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Data de publicação
19/09/2025
Criado por
FUNDACION POCO FRECUENTE
Tipo de Grupo
ONG
Âmbito
Cuidados e tratamentos de saúde
Incapacidades
Investigação científica
País
Espanha
Região
Almería
Copia e cola o URL
https://www.teaming.net/fundacionpocofrecuente
