We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Data de publicació
19/09/2025
Creat per
FUNDACION POCO FRECUENTE
Tipus de Grup
ONG
Àmbit
Ajuda a malalts
Discapacitat
Investigació
País
Espanya
Província
Almería
Copia i enganxa
https://www.teaming.net/fundacionpocofrecuente
