We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Data di pubblicazione
19/09/2025
Creato da
FUNDACION POCO FRECUENTE
Tipo di gruppo
ONG
Settore:
Aiuto ai pazienti
Persone con disabilità
Ricerca
Paese:
Spagna
Regione:
Almería
Copia incolla la URL
https://www.teaming.net/fundacionpocofrecuente
