We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Publication date
19/09/2025
Created by
FUNDACION POCO FRECUENTE
Type of Group
Non-profit
Field
Disabilities
Patient care
Research
Country
Spain
Region
Almería