We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Date de publication
19/09/2025
Créé par
FUNDACION POCO FRECUENTE
Type de Groupe
ONG
Domaine
Aide à des malades
Personnes handicapées
Recherche
Pays
Espagne
Région
Almería
Copie et colle l'url
https://www.teaming.net/fundacionpocofrecuente
