Fundación Poco Frecuente

We are a non-profit foundation created by parents who, almost by chance while organizing a charity activity, came across rare diseases. Although neither we nor our families are affected, for 13 years we have been dedicated to raising awareness, giving visibility, and supporting research. This journey has transformed us as we met unique people with an extraordinary ability to reinvent themselves. Will you help us research for them?

Nous destinons notre collecte à :

Investigacion en enfermedades raras

Proyecto de investigación enfermedades. Ayuda para poder seguir con los proyectos de investigación que llevamos a cabo

The funds raised will be dedicated to promoting research projects. Every 40 teamers allow us to finance one day of research each month. We want to boost a project we have been working on for the past five years to find out how many people are affected by a rare disease in Almería and its province. We use an artificial intelligence model that, once validated, will allow us to extend the system to the rest of Andalusia and, in the future, to other regions, saving time. It will provide us with very valuable information about the distribution of these diseases in our community, which will enable greater efficiency in the use of economic, social, and healthcare resources allocated to each population and healthcare area.