We are a group of parents who, while starting a charity initiative, unexpectedly came across rare diseases. Although neither we nor our families are affected, for 13 years we have dedicated our lives to raising awareness, giving visibility, and supporting research. Meeting so many unique and resilient people has transformed us. Will you help us research for them?
Datum der Veröffentlichung
19/09/2025
Created by
FUNDACION POCO FRECUENTE
Art der Gruppe
Nichtregierungsorganisation
Feld
Behinderung
Forschung
Hilfe für Kranke
Land
Spanien
Region
Almería
Kopiere die URL und füge sie ein
https://www.teaming.net/fundacionpocofrecuente
