Ángel Álvarez Rodríguez

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan

We manufacture prostheses for people who are amputees or who have been born without an arm. We have delivered hundreds of them in Spain. Mexico, Colombia, Kenya, Thailand and more than 50 other countries free of charge for people with disabilities who could never access this type of aid. Giving them this oportunity would improve their quality of life, increase their employability and, in the case of children in many countries, would allow them to go to school. HELPING IS TOO EASY NOT TO DO IT.

Alba est une petite fille intelligente, drôle, amicale. Même si l'on devrait plutôt dire " elle était ", car le 21 mars 2016, un terrible et tragique accident en état de choc du fait d'une crise d'épilepsie, a laissé tomber Alba d'un troisième étage. Alba a pu être sauvée, mais elle a beaucoup de lésions cérébrales. Maintenant, nous avons un long processus de rééducation neurologique devant nous pour voir à quel point elle peut se rétablir et redevenir la petite fille qu'elle était. Aidez-nous !