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Mateo was born with an extremely rare mutation in the Nek8 gene, which causes his organs to deteriorate. There are no studies, no research, no treatments and no cure… At the age of 9 months, he underwent a liver transplant and, at the age of 3, a kidney transplant. In the future, he will need heart surgery and possibly a heart transplant. There is a research team capable of helping to slow the progression of his condition, but they need funding (€62,000 per year).
What is the aid used for?
Mateo Huelves
El dinero recaudado irá destinado a costear los gastos directamente asociados a la enfermedad de Mateo así como a financiar una investigación del IBMB-CSIC de Barcelona para intentar conocer más de esta enfermedad e intentar frenar su progresión. La investigación tiene un coste de 62.000€/año.