Mateo was born with an extremely rare mutation in the Nek8 gene, which causes his organs to deteriorate. There are no studies, no research, no treatments and no cure… At the age of 9 months, he underwent a liver transplant and, at the age of 3, a kidney transplant. In the future, he will need heart surgery and possibly a heart transplant. There is a research team capable of helping to slow the progression of his condition, but they need funding (€62,000 per year).
El dinero recaudado irá destinado a costear los gastos directamente asociados a la enfermedad de Mateo así como a financiar una investigación del IBMB-CSIC de Barcelona para intentar conocer más de esta enfermedad e intentar frenar su progresión. La investigación tiene un coste de 62.000€/año.
Posted on
24/03/2022
Publication date
24/03/2022
Created by
Asociación Una Vida Para Mateo
Type of Group
Non-profit
Field
Disabilities
Patient care
Research
Country
Spain
Region
Madrid
Teamer
02/10/2025 16:49 h
Me he enamorado de Mateo.
Todo mi cariño para ti.
Estoy segura de que cumplirás muchos años
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