Sonia Rodriguez Eiris

Me llamo Miguel A., tengo 17años y padezco Leucodistrofia Metacromatica, una enfermedad sin cura y mortal.Poco a poco ire perdiendo mas movilidad, hasta quedarme postrado en una cama,pero mientras tenga VIDA me merezco hacerlo en las mejores condiciones posibles.Tengo dos hermanos mas y a mi mami se le hace un poco cuesta arriba cubrir con todos mis gastos.Nos ayudariais a mejorar nuestra calidad de vida? Con solo 1 euro al mes, nos estaríamos ayudando muchísimo. Muchisimas gracias

Fathers and mothers from all over Spain, aware of the seriousness of our children, we decided to fight to give them a better and hopeful future. That is why we have joined together in order to raise funds through the Duchenne Parent Project for research. Currently we have launched 22 research projects in our country aimed at finding a cure or improvement for this disease. Help us to follow, JOIN OUR CHALLENGE! desafioduchenne.org

Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.

Das Projekt will die Mütter- und Kindersterblichkeit zu senken. Keine Mutter darf mehr während Schwangerschaft und Geburt wegen vermeidbarer Ursachen sterben. Mutter sein und leben können! Sensibilisierung der Gemeinde für die Wichtigkeit von Vorsorgeuntersuchungen und in einem Gesundheitszentrum zu gebären. Ausbildung von Hebammen, Versorgung der ländlichen Gesundheitszentren und des Krankenhauses von Gambo mit nötigem Material für Entbindungen und deren Komplikationen sowie Krankentransporte.

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.

I'm Martin, they call me Tintin, I'm 2 years old. I was born with some malformations and one of them was a cleft lip, for which they operated on me when I was 3 months old. They had given my parents full assurance that it would be a simple operation, but something went wrong and I ended up in the Ucip with mechanical ventilation and deep sedation, and one day, they accidentally extubate me and I went into cardiorespiratory arrest for 15 min, and because of that accident I have cerebral palsy.