Sergio Olivera giron

Sevilla, Spanien


Teamer in 3 Gruppen

Seit 21-12-2016 gespendet: 195 €

Mitglied in folgenden Gruppen

3

53.412 € Gespendet

653 Teamer

Teamer seit:  21/12/2016

Osteogenesis imperfecta

Die Osteogenesis imperfecta (OI) umfasst eine heterogene Gruppe genetischer Erkrankungen mit erhöhter Knochenbrüchigkeit, geringer Knochenmasse und Neigung zu Knochenbrüchen unterschiedlichen Schweregrades.


10.781 € Gespendet

160 Teamer

Teamer seit:  29/10/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es


3.449 € Gespendet

48 Teamer

Teamer seit:  11/04/2019

Fundación AHUCE Osteogénesis Imperfecta

AHUCE Foundation (www.fundacionahuce.org) works to improve the quality of life of people with Osteogenesis Imperfecta (OI) through research. OI is a congenital pathology characterized by an inadequate formation of bone tissue. People's bones are very fragile. There are other manifestations, such as short stature, hyperlaxity, respiratory problems, cardiovascular problems, weak musculature, hearing loss, vision problems, scoliosis and chronic pain.