Jordi Noguera padilla
Barcelona, Espanha
Teamer de 2 Grupos
Contribui mensalmente: 2 € para 2 Grupos/projetos sociais
Desde 28-07-2023 contribuiu 43 €
Grupos de que participa
1 494 € Arrecadados
39 Teamers
Teamer desde: 28/07/2023
I'm Paula!!! I'm a 4-year-old girl, my life hasn't been easy since I was born, I have a genetic mutation of Novo "COL4A1" that is, a rare disease, We don't find anyone like me in Spain (even in that I'm special) as a result of this disease I have epileptic seizures, low vision, affected the right side of the body ... therefore I don't walk and I don't speak either, but thanks to my parents (Fernando, Miriam) who do everything possible for me, so my life is easier. Thank you all!
34 618 € Arrecadados
598 Teamers
Teamer desde: 08/08/2023
Abril is a 8-year-old girl diagnosed with SPG52, with only 55 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 8 she can hardly move anymore.