Jordi Noguera padilla
Barcelona, Espanya
Teamer de 2 Grups
Cada mes aporta 2 € a 2 Grups
Des del 28-07-2023 ha aportat 43 €
Grups on participa
1.494 € Recaptats
39 Teamers
Teamer des de: 28/07/2023
I'm Paula!!! I'm a 4-year-old girl, my life hasn't been easy since I was born, I have a genetic mutation of Novo "COL4A1" that is, a rare disease, We don't find anyone like me in Spain (even in that I'm special) as a result of this disease I have epileptic seizures, low vision, affected the right side of the body ... therefore I don't walk and I don't speak either, but thanks to my parents (Fernando, Miriam) who do everything possible for me, so my life is easier. Thank you all!
34.618 € Recaptats
598 Teamers
Teamer des de: 08/08/2023
Abril is a 8-year-old girl diagnosed with SPG52, with only 55 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 8 she can hardly move anymore.