Teamer depuis : 24/10/2018
We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es
Teamer depuis : 10/03/2022
Depuis le début du conflit en 2022, les Ukrainiens touchés par la guerre ont toujours besoin de notre aide, près de trois ans plus tard. En collaboration avec plusieurs organisations, dont la CEAR (Commission espagnole d'aide aux réfugiés), nous restons déterminés à soutenir ceux qui sont venus en Espagne pour construire une nouvelle vie.
Teamer depuis : 25/06/2024
Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease of unknown origin, without a cure and with a short life expectancy. In 90% of the patients it courses randomly, with no family history. ELA Andalucía is an association that was born in 2005, Declared of Public Utility, and that works day by day so that affected people and families have access to different aid and local social health services, which improve their well-being in the short and medium term.