Teamer des de: 24/10/2018
We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es
Teamer des de: 10/03/2022
Since the conflict began in 2022, we formed this group to support Ukrainians impacted by the war. Nearly three years later, they still need our help. Together with various organizations, including CEAR (the Spanish Commission for Refugee Aid), we remain committed to supporting those who have come to Spain to build a new life.
Teamer des de: 25/06/2024
Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease of unknown origin, without a cure and with a short life expectancy. In 90% of the patients it courses randomly, with no family history. ELA Andalucía is an association that was born in 2005, Declared of Public Utility, and that works day by day so that affected people and families have access to different aid and local social health services, which improve their well-being in the short and medium term.