Georgina Padrell Miras

Georgina Padrell Miras

Tarragona,  Spagna


Teamer in 1 Gruppi

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Da 29-05-2017 ha contribuito 100 €

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18.983 € Totale raccolto

131 Teamer

Teamer da:  29/05/2017

Fans of Lluís

Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.