Tarragona, Espagne
Teamer de 1 Groupes
Chaque mois il/elle apporte 1 € à 1 Groupes
Depuis le 29-05-2017 il/elle a donné 100 €
Teamer depuis : 29/05/2017
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.