Georgina Padrell Miras
Tarragona, Espanha
Teamer de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 29-05-2017 contribuiu 100 €
Grupos de que participa
18 983 € Arrecadados
131 Teamers
Teamer desde: 29/05/2017
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.