Help People Affected by Leukodystrophies

Leukodystrophies are genetic diseases that progressively destroy the myelin in the brain and spinal cord. At ELA España, we invest nearly €100,000 each year in research, but families need help today. Our goal is to raise €25,000 a year to fund essential needs not covered by public healthcare. With just €1 a month, you can help improve their quality of life.

Projeto apoiado

TODOS POR LOS NIÑOS CON LEUCODISTROFIA

ELA ESPAÑA

We are a group of families united by leukodystrophy. Our goal is to raise €25,000 a year to fund essential needs that are not covered, or only partly covered, by public healthcare: home and vehicle adaptations, wheelchairs, standing frames, physiotherapy and other vital support. No family should have to give up a loved one's quality of life because of financial hardship. Our goal is to raise €25,000 every year so that no family has to go without the support and equipment they need simply because they cannot afford it. When a disease changes everything, knowing you are not alone is also part of the treatment. Join us for just €1 a month.

Publicado em
13/03/2012

Mais informação
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Página web:
http://www.elaespana.com

Atualizações do Grupo

ELA-España Leucodistrofias
Teaming Manager

23/04/2026 08:47 h

Hoy compartimos la historia de Alejandro , diagnosticado en la edad adulta de leucodistrofia metacromática.
Dale al play, escucha y comparte. Su historia nos recuerda lo importante que es el diagnóstico precoz.
Si quieres ayudar de forma sencilla pero muy valiosa, te invitamos a unirte a nuestro Teaming. Con solo 1 € al mes puedes contribuir a dar visibilidad y apoyar nuestra labor.

Cada pequeño gesto suma y nos acerca al cambio que necesitamos.

Y si puedes, comparte esta historia para que llegue a más personas