Ana Estrella García Lázaro

Am 21. März 2016 hat sich unser Leben für immer verändert. Alba hatte einen Unfall und stürzte aus dem dritten Stock. Sie überlebte, erlitt jedoch schwere Hirnschäden. Seitdem benötigt sie kontinuierliche Neurorehabilitationsmaßnahmen, die nicht von der Sozialversicherung übernommen werden und deren Kosten wir nicht alleine tragen können. Jeden Tag kämpfen wir für ihre Genesung. Möchtest du uns helfen, ihre Lebensqualität zu verbessern?

The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/

Eric has a rare genetic disease called CDKL5 which has no cure, he suffers from untreatable epilepsy since he was 20 days old, unfortunatelly he not able to walk, hold his head or manipulate. We also feed him through a gtube in his stomach. Giving Eric good quality of life Is very expensive and that Is why we ask for help.