Ana Estrella García Lázaro
Cádiz, Espanya
Teamer de 3 Grups
Cada mes aporta 2 € a 2 Grups
Des del 03-07-2016 ha aportat 255 €
Grups on participa
119.247 € Recaptats
1.030 Teamers
Teamer des de: 03/07/2016
El 21 de març del 2016 la nostra vida va canviar per sempre. Alba va patir un accident i va caure des d'una tercera planta. Va sobreviure, però amb un greu dany cerebral. Des de llavors necessita teràpies contínues de neurorehabilitació no cobertes per la Seguretat Social, amb un cost que no podem assumir sols. Cada dia lluitem per la recuperació. T'uneixes per ajudar-nos a millorar la seva qualitat de vida?
6.805 € Recaptats
59 Teamers
Teamer des de: 20/07/2017
The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/
2.442 € Recaptats
52 Teamers
Teamer des de: 30/09/2018
Eric has a rare genetic disease called CDKL5 which has no cure, he suffers from untreatable epilepsy since he was 20 days old, unfortunatelly he not able to walk, hold his head or manipulate. We also feed him through a gtube in his stomach. Giving Eric good quality of life Is very expensive and that Is why we ask for help.