Yo Nemalínica, looking for a therapy for Nemaline Myopathy

22/10/2018

NGO

We are a non-profit association consisting only of 25 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es

200 Teamers

Total raised:

2,811€

This is the over-all amount the Group has collected since it was created;. The amount includes the euros already donated and those to be donated.

Amount raised for the project

387€

This is the amount which will be destined to the cause the Group is supporting at the moment. When the Teaming Manager carries out the donation, this counter will be set back to 0.

We've already donated:

2,424€

This is the amount the Group has donated since it was created;. It is the total sum of euros transferred to various causes the Group has been supporting (or to a single cause in the event the Group always supports the same one).

Project we support

MYOCURE - Investigación Miopatía Nemalínica

Yo Nemalínica

MYOCURE, es el nombre de nuestro proyecto. Dirigido por el investigador José Antonio Sánchez Alcázar y basado en la “Medicina de Precisión” tiene como meta hallar un tratamiento efectivo para la Miopatía Nemalínica. MYOCURE se realiza en colaboración con el Centro Andal

MYOCURE - Investigación Miopatía Nemalínica

Posted on01/11/2018

MYOCURE, es el nombre de nuestro proyecto. Dirigido por el investigador José Antonio Sánchez Alcázar y basado en la “Medicina de Precisión” tiene como meta hallar un tratamiento efectivo para la Miopatía Nemalínica. MYOCURE se realiza en colaboración con el Centro Andal

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Group progresses

José Palomo

26/06/2020 13:47 h

Queridos teamers,

Hace un año, la Miopatía Nemalínica no se investigaba en nuestro pais, y hoy en día, gracias a vosotros, podemos decir ¡¡seguimos investigando!!

El pasado 15 de Junio firmamos con la Universidad Pablo de Olavide de Sev...

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2 Comments

Javier Santos Martín

28/11/2018 10:14 h

Un placer poder ayudar. Gracias por invitarme.

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0 Comments

Last comment

Javier Santos Martín

28/11/2018 10:14 h

Un placer poder ayudar. Gracias por invitarme.

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0 Comments

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Teaming Manager

José Palomo

22/10/2018

José Palomo

Cooperates with  1  Group and leads  1  of them

200 Teamers

Teamers sorted by joining date

What does it mean to become a Teamer?A Teamer is an individual who decides to donate 1 euro every month to his/her Group.

TODAY

Lorena Cabezas Tocino

Cooperates with  1  Group

29/09/2020

Javier valdes hernandez

Cooperates with  1  Group

22/09/2020

Carolina Lázaro Sáez

Cooperates with  73  Groups

20/09/2020

Cristina Bustamante Gutiérrez

Cooperates with  1  Group

12/09/2020

María Pérez García

Cooperates with  1  Group

05/09/2020

Agustina Cano Garcia

Cooperates with  1  Group

05/09/2020

Antonio Abellan Vázquez

Cooperates with  1  Group

Jose Ana

03/09/2020

Jose Ana

Cooperates with  1  Group

Miguel Garcia

31/08/2020

Miguel Garcia

Cooperates with  1  Group

Toscana Granados

31/08/2020

Toscana Granados

Cooperates with  1  Group

31/08/2020

Dolores Huertas Garcia

Cooperates with  1  Group

Susa HG

31/08/2020

Susa HG

Cooperates with  1  Group

31/08/2020

Francisca Moya del Baño

Cooperates with  1  Group

31/08/2020

Sefi Marín Saorín

Cooperates with  1  Group

30/08/2020

Agustín Alcalá Fernández

Cooperates with  1  Group

Desiderio Mejías Verdú

29/08/2020

Desiderio Mejías Verdú

Cooperates with  1  Group

29/08/2020

Manuela Albert Sánchez

Cooperates with  1  Group

29/08/2020

Elvira Egea Abellán

Cooperates with  1  Group

jose caricas

29/08/2020

jose caricas

Cooperates with  1  Group

29/08/2020

Laura Moya Angosto

Cooperates with  1  Group