Yo Nemalínica, looking for a therapy for Nemaline Myopathy

22/10/2018

NGO

We are a non-profit association consisting only of 25 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es

180 Teamers

Total raised:

2,255€

This is the over-all amount the Group has collected since it was created;. The amount includes the euros already donated and those to be donated.

Amount raised for the project

406€

This is the amount which will be destined to the cause the Group is supporting at the moment. When the Teaming Manager carries out the donation, this counter will be set back to 0.

We've already donated:

1,849€

This is the amount the Group has donated since it was created;. It is the total sum of euros transferred to various causes the Group has been supporting (or to a single cause in the event the Group always supports the same one).

Project we support

MYOCURE - Investigación Miopatía Nemalínica

Yo Nemalínica

MYOCURE, es el nombre de nuestro proyecto. Dirigido por el investigador José Antonio Sánchez Alcázar y basado en la “Medicina de Precisión” tiene como meta hallar un tratamiento efectivo para la Miopatía Nemalínica. MYOCURE se realiza en colaboración con el Centro Andal

MYOCURE - Investigación Miopatía Nemalínica

Posted on01/11/2018

MYOCURE, es el nombre de nuestro proyecto. Dirigido por el investigador José Antonio Sánchez Alcázar y basado en la “Medicina de Precisión” tiene como meta hallar un tratamiento efectivo para la Miopatía Nemalínica. MYOCURE se realiza en colaboración con el Centro Andal

Group's Forum

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Group progresses

José Palomo

26/06/2020 13:47 h

Queridos teamers,

Hace un año, la Miopatía Nemalínica no se investigaba en nuestro pais, y hoy en día, gracias a vosotros, podemos decir ¡¡seguimos investigando!!

El pasado 15 de Junio firmamos con la Universidad Pablo de Olavide de Sev...

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2 Comments

Javier Santos Martín

28/11/2018 10:14 h

Un placer poder ayudar. Gracias por invitarme.

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0 Comments

Last comment

Javier Santos Martín

28/11/2018 10:14 h

Un placer poder ayudar. Gracias por invitarme.

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0 Comments

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Teaming Manager

José Palomo

22/10/2018

José Palomo

Cooperates with  1  Group and leads  1  of them

180 Teamers

Teamers sorted by joining date

What does it mean to become a Teamer?A Teamer is an individual who decides to donate 1 euro every month to his/her Group.
SILVIA CLAUDIA

08/07/2020

SILVIA CLAUDIA

Cooperates with  2  Groups

Zila Pinto Ibañez

05/07/2020

Zila Pinto Ibañez

Cooperates with  1  Group

Daniel Guerra Ponce

02/07/2020

Daniel Guerra Ponce

Cooperates with  1  Group

21/06/2020

Encarnacion Durio Siloniz

Cooperates with  2  Groups

21/06/2020

Marta  González Durio

Cooperates with  6  Groups

19/06/2020

Carmen Pérez García

Cooperates with  4  Groups

Estefania Trujillo

17/06/2020

Estefania Trujillo

Cooperates with  1  Group

17/06/2020

Jessica López López

Cooperates with  3  Groups

Almu Rosa

17/06/2020

Almu Rosa

Cooperates with  1  Group

María Jesús MB

17/06/2020

María Jesús MB

Cooperates with  1  Group

Carlos Rodriguez

17/06/2020

Carlos Rodriguez

Cooperates with  1  Group

Carmen Rosa

16/06/2020

Carmen Rosa

Cooperates with  1  Group

Guillermo Villanego Chaza

16/06/2020

Guillermo Villanego Chaza

Cooperates with  12  Groups

Manuel Rios Muñoz

16/06/2020

Manuel Rios Muñoz

Cooperates with  1  Group

Daniel Peñaloza

16/06/2020

Daniel Peñaloza

Cooperates with  1  Group

Enmanuel Alvarez

16/06/2020

Enmanuel Alvarez

Cooperates with  1  Group

Jose VC

15/06/2020

Jose VC

Cooperates with  1  Group

15/06/2020

Mercedes Acosta Roa

Cooperates with  1  Group

15/06/2020

María Nieves Montero Lomas

Cooperates with  8  Groups

15/06/2020

Isabel Martínez

Cooperates with  1  Group