Vanessa Rodríguez Perondi

Ayúdanos a financiar una línea de investigación en España sobre el trastorno CDKL5 para que nuestros hijos/as tengan la mejor calidad de vida posible. Esta enfermedad genética rara se caracteriza por epilepsia infantil intratable y retraso severo en el desarrollo, como resultado de la mutación del gen CDKL5. La mayoría no hablan, no caminan, no pueden alimentarse por sí mismos y tienen bajo tono muscular, escoliosis, problemas respiratorios, reflujo gastroesofágico… www.aacdkl5.org

Eric has a rare genetic disease called CDKL5 which has no cure, he suffers from untreatable epilepsy since he was 20 days old, unfortunatelly he not able to walk, hold his head or manipulate. We also feed him through a gtube in his stomach. Giving Eric good quality of life Is very expensive and that Is why we ask for help.

Yemen is living a brutal humanitarian emergency. The girls are married off in hopes that they will be fed. The boys are recruited as soldiers. Their lives are hell: rapes, pregnancies, violence. If the school provides food, families are more likely to bring them. We give milk, bread, egg/cheese/tuna and fruit to 1680 children and their lifes have changed!!. 1 breakfast =€0.56. 1month=€13,2. TOTAL 3 school/month= €20.698. Your € FEEDS, EDUCATES AND PROTECTS.