Vanessa Rodríguez Perondi

The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/

Eric has a rare genetic disease called CDKL5 which has no cure, he suffers from untreatable epilepsy since he was 20 days old, unfortunatelly he not able to walk, hold his head or manipulate. We also feed him through a gtube in his stomach. Giving Eric good quality of life Is very expensive and that Is why we ask for help.

Le Yémen vit 1 urgence humanitaire brutale. Les filles sont mariées en pensant qu'elles seront nourries et les garçons recrutés comme soldats. Leur vie est un enfer: viols, grossesses, violence. Si l'école les nourrit les familles les y emmènent. Nous donnons lait, pain, œufs/fromage/thon et fruits à 1747 enfants et la vie a changé pour eux. 1 petit déj=0,59€. 1enfant/1mois=13 €. TOTAL a les 3écoles/mois=22.711€ 1€ POUR NOURRIT, ENSEIGNER ET PROTÈGER