Toni Sanz
Barcelona, Spain
Teamer in 2 Groups
Contributes every month: €2 to 2 Groups
Since 19-09-2017 has contributed €181
Groups supported
€18,983 Raised
131 Teamers
Teamer since: 19/09/2017
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.
€3,010 Raised
21 Teamers
Teamer since: 13/04/2018
Izan tiene una Enfermedad Genética Rara, dificulta su proceso de desarrollo y aprendizaje debido a su hipotonia. HAY 35 CASOS EN TODO EL MUNDO. Recibió un tratamiento durante dos mes en California, ABM,que debemos continuar para mejorar su calidad de vida. Además realizamos otras terapias, una de ellas llamada ABR. Tenemos grandes esperanzas. El coste mensual de los diferentes tratamientos supone unos 2000 euros aproximadamente al mes . Ayúdanos a seguir Luchando Por Izan!!