Sílvia Bernaus

Sílvia Bernaus

Barcelona,  Spagna


Teamer in 1 Gruppi

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35.793 € Totale raccolto

598 Teamer

Teamer da:  19/04/2024

La Lucha de Abril

Abril is a 8-year-old girl diagnosed with SPG52, with only 55 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 8 she can hardly move anymore.