Sílvia Bernaus

Sílvia Bernaus

Barcelona,  Espagne


Teamer de 1 Groupes

Groupes auxquels il/elle participe

1

35 793 € récoltés

598 Teamers

Teamer depuis :  19/04/2024

La Lucha de Abril

Abril is a 8-year-old girl diagnosed with SPG52, with only 55 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 8 she can hardly move anymore.