Sílvia Bernaus

Sílvia Bernaus

Barcelona, Espanya


Teamer de 1 Grups

Grups on participa

1

27.470 € Recaptats

624 Teamers

Teamer des de:  19/04/2024

La Lucha de Abril

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.