Paquita Ramirez Martos
Barcelona, Spanien
Teamer in 3 Gruppen
Spendet jeden Monat: 3 € für 3 Gruppen
Seit 28-06-2019 gespendet: 127 €
Mitglied in folgenden Gruppen
27.470 € Gespendet
624 Teamer
Teamer seit: 28/06/2019
Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.
2.781 € Gespendet
26 Teamer
Teamer seit: 26/08/2020
Necesitamos para terapias para nuestra princesa María, para que pueda tener calidad de vida ya que aun no le entra nada por la seguridad social, ella necesita vuestro apoyo ya que se merece tener una vida de niña y tener la independecia de cualquier niña ya que aun no sabemos si hablara o cunado ni como andara, ahora tiene una epilepsia rara la criptogenica generalizada rebelde y esta intratable.
443 € Gespendet
42 Teamer
Teamer seit: 29/06/2022
Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.