María José López Duarte
Sevilla, Espanya
Teamer de 2 Grups
Cada mes aporta 2 € a 2 Grups
Des del 24-10-2018 ha aportat 94 €
Grups on participa
10.780 € Recaptats
159 Teamers
Teamer des de: 24/10/2018
We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es
63.751 € Recaptats
916 Teamers
Teamer des de: 28/02/2022
Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.