María Elena Durán Guindel

We are a non-profit entity with 27 years of experience, our headquarters are in Madrid but we work supporting families from all the autonomous communities. Our goal is to carry out the first specific residence for people with Prader Willi Syndrome. Help us to fulfill their rights, help us to give them a home!!

Somos una asociación sin ánimo de lucro que nos encargamos de obtener beneficios para la ayuda de niños con algún tipo de discapacidad (ya sea física, neuronal…), a partir de eventos solidarios, los cuales se realizan a través de Facebook o a través de algún acto solidario presencial. Nuestra prioridad es conseguir que su día a día sea mejor. Siguenos: www.asociacionsolidaridadconnuestrosniños.es https://www.facebook.com/Asociaci%C3%B3n-Solidaridad-con-Nuestros-Ni%C3%B1os-690431001020618/

I am Alexandra, I am 6 years old and I am one of 20 million. In the world there are only 135 children who suffer from Hutchinson Gilford Progeria Syndrome; an ultra-rare genetic disease that causes premature aging with an average life expectancy of 14 years and that currently has no cure. From the Progeria Alexandra Peraut Association, we ask for your collaboration to improve the quality of life of these children and to finance research on their cure.