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I am Alexandra, I am 6 years old and I am one of 20 million. In the world there are only 135 children who suffer from Hutchinson Gilford Progeria Syndrome; an ultra-rare genetic disease that causes premature aging with an average life expectancy of 14 years and that currently has no cure. From the Progeria Alexandra Peraut Association, we ask for your collaboration to improve the quality of life of these children and to finance research on their cure.
What is the aid used for?
Encontrar la cura al envejecimiento prematuro
Gracias a la aportación mensual de cada teamer conseguimos estar un poquito más cerca de la cura del Síndrome de Hutchinson Gilford y dar mejor calidad de vida a los niños con Progeria. Visita nuestra web para ampliar la información o si quieres realizar una aportación extra.