Juan Ramon Fons Sebastia

Juan Ramon Fons Sebastia

Valencia, Espanha


Teamer de 1 Grupos

Desde 23-09-2020 contribuiu 20 €

Grupos de que participa

1

27 474 € Arrecadados

628 Teamers

Teamer desde:  23/09/2020

La Lucha de Abril

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.