Juan Ramon Fons Sebastia

Juan Ramon Fons Sebastia

Valencia,  Spanien


Teamer in 1 Gruppen

Seit 23-09-2020 gespendet: 20 €

Mitglied in folgenden Gruppen

1

35.793 € Gespendet

598 Teamer

Teamer seit:  23/09/2020

La Lucha de Abril

Abril is a 8-year-old girl diagnosed with SPG52, with only 55 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 8 she can hardly move anymore.