Juan Manuel Alemán Santana

Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.

Did you know that 5,000 people get sick with leukaemia each year in Spain, which is the most common childhood cancer, and that despite the progress made, we still lose one in four minors and half of adults? At the Josep Carreras Foundation we have been working for more than 30 years to make leukaemia a 100% curable disease, to find 100% compatible donors for everyone, and to make displaced patients feel at home. With your help, we are unstoppable.

Somos un grupo de niños/as que tenemos el síndrome de duplicación mecp2, que nos produce retraso mental, psicomotor y de lenguaje, insomnio, infecciones respiratorias, esteriotipias… crisis epilépticas que nos producen regresión. En el hospital Sant Joan de Deu de Bcn se investiga gracias a las familias y a las donaciones privadas para encontrar un tratamiento o cura que mejore nuestra calidad de vida.Necesitamos tu ayuda! www.duplicacionmecp2.es