Juan José Rosa Roca

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es

Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.

AELEM, Asociación Española de Lucha contra la Esclerosis Múltiple, es una entidad sin ánimo de lucro, totalmente gratuita; nuestros recursos económicos dependen de las donaciones de socios y de diferentes entidades; todas nuestras acciones repercuten en afectados de Esclerosis Múltiple, y con vuestra colaboración nos permitirá seguir trabajando en favor de todos los afectados. AELEM nace con vocación de ser un punto de encuentro de cualquier persona concienciada con la enfermedad.