Josep Bonilla Garcés

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.

Open Arms opens its arms to women, men, boys, girls and all those fleeing horror, looking for a chance. The humanitarian emergency in the Mediterranean does not stop and our mission is to protect the lives of the most vulnerable at sea, and on land continues. Working in schools on human rights and empathy and denouncing all injustices is our mission as well. From your hand we can prevent more deaths. We need each other. You are needed.

Asociacion que acoge a familias con hijos afectados por el sindrome CTNNB1. Enfermedad genetica minoritaria. info@asociacionctnnb1.org www.asociacionctnnb1.org

Abril is a 7-year-old girl diagnosed with SPG52, with only 50 diagnoses in the world. SPG52 is an ultra-rare disease that causes very serious symptoms such as severe intellectual disability, epileptic seizures and very rapid muscle degradation in the lower body. Abril started walking when she was 3 years old and now at 7 she can hardly move anymore.