jose caricas

Murcia,  Espanha


Teamer de 1 Grupos

Desde 29-08-2020 contribuiu 45 €

Grupos de que participa

1

12 816 € Arrecadados

140 Teamers

Teamer desde:  29/08/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es