JORDI SANVIDAL AIS
Tarragona, Spain
Teamer in 1 Groups
Contributes every month: €1 to 1 Groups
Since 23-12-2013 has contributed €205
Groups supported
€18,983 Raised
131 Teamers
Teamer since: 16/01/2019
Our motto is Children Against Laminopathy, specifically L-CMD. We raise funds for research into this serious disease, rare among rare diseases, with the dream of finding a cure. Few cases are known worldwide and, as a result, neither pharmaceutical companies nor public administrations are researching this disease. We have to raise all the funds privately as parents. It is a degenerative disease that is fatal within a few years.