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Actualització de com va la causa
AELALD is growing and transforming. From now on, we are LAL-D Patient Organization (LAL-D PO)
We are taking this step because more and more families from around the world are reaching out to us—and we want to be there for them.
Our mission remains the same: to support, give a voice, and fight for early diagnosis, research, and better quality of life for everyone affected by LAL-D.
Stay tuned! Our new website will be available soon in English and Spanish.
#TogetherWeAreStronger #LALD #LALDPO #LAL_D #LALDeficiency #LysosomalAcidLipaseDeficiency #LysosomalAcidLipase #WolmanDisease #CESD #LivingWithLALD #LALDPower #LIPA #EverySecondCounts
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Aquest fòrum és únicament pels Teamers i Teaming Managers del Grup.
Per comentar:
Teaming Manager
el 10/10/2025 a les 18:54h